Organized by RDI in collaboration with the Thalassaemia International Federation, EURORDIS and Orphanet

Universal Health Coverage: Including Rare Diseases to Leave No One Behind

Thursday, May 23, 2019
6:00 PM – 8:00 PM

International Red Cross Museum
Henry Dunant Room
Geneva, Switzerland

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Through this high-level event awareness and knowledge on the topic of rare diseases will be promoted, as well as the strengthening of the unity of the international community, the patient community and all relevant stakeholders to address the unmet needs of this largely ignored and vulnerable population within Universal Health Coverage. The event will start with a drinks reception followed by keynote addresses and a panel discussion. Delegates attending the WHA will have the opportunity to meet with patient advocates and other stakeholders from the rare disease community.

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