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How Transformational Digital Technologies Can Contribute to Leave No One Behind in UHC: The Case of Rare Diseases

May 23 @ 12:30 pm - 2:00 pm

Organized by Permanent Missions of the European Union, Romania and Kuwait in collaboration with the Thalassaemia International Federation, Rare Diseases International (RDI), and the European Organisation for Rare Diseases (EURORDIS)

How Transformational Digital Technologies Can Contribute to Leave No One Behind in UHC: The Case of Rare Diseases

Thursday, May 23, 2019
12:30 PM – 2:00 PM

Palais des Nations
Geneva, Switzerland

RSVP

New digital tools are already being used to address the challenges of the 300 million people living with a rare disease to connect highly isolated patients, enable access and speed up diagnosis, refer to specialised medical expertise, to gather and share expertise on highly complex care, and accelerate clinical research over 6000 different diseases, each affecting a small population. Thus the event will demonstrate the global added value of using digital technologies to improve access to diagnosis and care while reducing the cost of health services. Moreover, particular emphasis will be placed on the efforts of the EU to strengthen the European Reference Networks (ERNs) and lay the foundations for the development of Global Reference Networks, encouraging the use of new technologies for tele-medicine / tele-collaboration between healthcare professionals and Centres of Expertise.

 

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Details

Date:
May 23
Time:
12:30 pm - 2:00 pm
Event Categories:
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Organizers

Thalassaemia International Federation
Rare Diseases International
European Organisation for Rare Diseases

Venue

Palais de Nations